Keeping Ethans Voice Alive

We all have dreams and when we help each other we pay it forward. My gift is to write stories about others in hope that it will help them reach just the right people that can help them.

Recently I have been trying to help a young man get to Long Beach in July. Now it is time for me to focus on another young man that needs to have a dream come true too.

Words from his mother Laurie: "Ethan was born with a Rare Fatal Seizure Gene called, I.S.S.X gene Infantile, Spasms, Syndrome, X linked. Ethan is blind, like a newborn baby, has one normal sized lung,and one baby size(1-2 ribs),His stomach and intestines are in Advanced Failure so he eats TPN through a broviac catheter which tunnels through a major artery near his heart which at times causes him to go into Septic Shock which is Fatal. He also has Chronic Asthma, and his Immune System is Severely Compromised causing him to get sick very easily when he's around sick people or in crowds ,he also has a rare blood disorder in which his counts severely drop at times causing him to need a blood transfusion and sometimes also Platelets. He's Truly a Miracle."

Ethans Life Story

Words from his mother Laurie: "Ethan in excruciating pain sitting up due to his stomach and intestines being in Advanced Failure."

Ethan needs your help to get him a bigger mini van with lots of leg room for him to stretch out and a more comfortable special needs car seat so he's comfortable when driving Ethan to Doctor appointments.

Words from his mother Laurie: "Ethan makes my Life more beautiful just by him being in it, and I want to better his life for him by making his wish come true."

BringingEllenDegeneresToEthan